On the Mend

Holy eventful weekend. I can with pleasure say that Evan seems to be on the mend. We arrived at his pediatrician a few minutes before they opened on Saturday and after a 90 minute appointment, we left with a probable viral infection diagnosis. Evans ears, lungs, throat, nose all looked clear, so the doctor decided to take blood and a nose swap to test for the flu. Everything came back good, but his red blood cell count was slightly elevated which apparently means a possible viral infection. The doctor who Evan saw had never examined him before and had never see a bubble boy before. He was extremely cautious and protective of Evan’s health, and wanted to do additional tests to ensure he didn’t have a skin infection. He also contacted Dr. Bauer in Chicago to make sure he wasn’t missing anything while reviewing his lab results. Now that is what I call true customer care!

Despite Evan’s health improvement, his sleep/nap/schedule is now completely messed up. We had such a schedule…naps, sleep, eating, all of it was set. Not only did Evan turn 8 months old on Friday (which based on the copious amounts of research I’ve done is a huge huge developmental age for them), he also now has a tooth (and maybe a second..and OMG ouch). Evan also pulled himself up for the first time on our basement ottoman. Apparently these little guys don’t sleep as much when they hit these milestones because they are constantly thinking about mastering these new skills. Similar to when us adults have big tests, meetings, etc we are prepping for. It may be a bunch of mumbo jumbo but hopefully this is temporary because mom and dad are exhausted and it’s only Tuesday. 5:15 is his new wake up time which is just not happening! My mom has been absolutely amazing with Evan these past few days and I am soooo thankful she is here to help us. Hopefully things get a little easier on all of us once he goes back to his old predictable schedule (fingers crossed).

Dr. Bauer advised us to wait a few days to do Evan’s next fill, which we now do on Thursdays. We plan to do his next fill Saturday, with his final fill Friday evening before we take off Saturday (per Dr. Bauer’s approval). Hard to believe surgery is 13 days away. Let the countdown begin!